FDA approves new cannabis based drug to treat epilepsy
SAN DIEGO (KUSI) – The FDA has approved a cannabis based drug to treat epilepsy. Dr. Jerry Shih, Director of Comprehensive Epilepsy Center at UCSD, was in studio to tell KUSI’s Lauren Phinney all about the new drug and an event taking place this weekend designed to raise awareness.
LOKK for Epilepsy (dedicated to LOKK Legal) is a San Diego based non-profit organization founded by the family and friends of Koorosh Khashayar and we are dedicated to raising funds and awareness for epilepsy research. Our critical mission is to find a cure for Epilepsy, not just control the seizures, to find a cure for this disorder and to prevail over the challenges that effect so many people each day from experiencing a full life. We will do this through educating and funding research to accelerate treatment.
Koorosh Khashayar (owner of LOKK Legal, a San Diego based Law firm) passed away (on September 6, 2015) at the age of 32, from a seizure. He was a pillar of his community and a successful young attorney. Koorosh was an amazing man who worked hard to help the people in his community. He not only donated funds to great causes (Miracle Babies, Susan G. Komen for Breast Cancer, Big Brother/Big Sister of San Diego and many more) , but he also volunteered his free time to feed the homeless at the Urban Angels in San Diego and walked the 60 miles to support the Susan G. Komen foundation’s 3-Day walk for breast cancer awareness numerous times.
Koorosh was a man to be admired, who held a high regard for helping others, and he was taken from us too soon. Koorosh was diagnosed with Epilepsy after he had his first seizure when he was only 17 years old. This is when Koorosh and his family began to understand the frustrations of dealing with this disease. The lack of information, funding and research, the lack of actual knowledge about the medication prescribed by doctors, and ongoing testing of multiple medications was alarming. Koorosh was put on different medications and treated by multiple doctors in many cities across California, from Stanford to the University of San Francisco, to San Diego. None of these doctors or medications succeeded in curing his Epilepsy, they only went to attempt to control the seizures. The medications he took (and all epileptic patients take) only reduce the likelihood of a seizure but do not provide a cure. He and his family were very frustrated over the years being told by many doctors that he would be living with this forever, and continue to take various medications, each with their own side effects.
Koorosh lived a great life, he did not let this effect how he lived, loved and cared for everyone he encountered. Most of the people that knew him did not know what he was dealing with on a day to day basis. He was very proud and did not want any sympathy, he wanted to be the one who helped others. He was full of life and his family and friends want to ensure the frustration and loss that they have experienced does not affect others. This is why this foundation has been formed, to get the word out, to get the needed funding to finally find a cure for Epilepsy. Browse the Lokk 4 Epilepsy web site to learn more about us and our goals to find a cure for epilepsy.