SB 97 privacy issues will require patients to report if they have Parkinson’s disease
SAN DIEGO (KUSI) – This is yet another case of how government works in Sacramento, or more precisely, how it often times doesn’t work.
On July 1, healthcare providers in California are required to report to the State of California Department of Health about all patients that are diagnosed or being treated for parkinson’s disease. The law has raised many questions about the patients right of privacy, and the reporting requirements for healthcare providers that it’s likely to be delayed for another year.
KUSI’s Steve Bosh went to the hospital and noticed multiple stacks of papers about two inches high. The doctor told him that was all for this one patient’s doctor visits. And it gets worse, some doctors spend about 40% of their time doing paperwork.
SB 97 – (6) Existing law requires the State Department of Public Health to conduct a program of epidemiological assessments of the incidence of Parkinson’s disease, as specified. Under existing law, these provisions may be implemented only to the extent funds from federal or private sources are made available for this purpose. Existing law requires the director of the department to establish a statewide system for the collection of data regarding Parkinson’s disease.
This bill additionally would establish the Richard Paul Hemann Parkinson’s Disease Program, which, among other things, would require the department to collect data on the incidence of Parkinson’s disease in California, as specified. Beginning July 1, 2018, the bill would require a hospital, facility, physician and surgeon, or other health care provider diagnosing or providing treatment to Parkinson’s disease patients to report each case of Parkinson’s disease to the department, as prescribed.
The bill would be implemented only to the extent funds are made available for its purposes. The bill would repeal these provisions on January 1, 2020